Living With Meniere’s Disease Is Like..

Living With Meniere's Disease Is Like...

“It is a feeling of being in a fog trying to make my way at times to my room, any room and feeling relieved to be there. Musical instruments that make various beautiful sounds that create lovely songs can be for me at times very engulfing to my ears. I feel like I am in the middle of the players and want to shout, "Stop playing"! I hear all sounds, various sounds in my ears every day, all the time.

Many, many years ago, I en-joyed going to the amusement park even when my children were grown, I enjoyed the merry-go-round and the Ferris wheel, the excitement and feeling of the ride, going round and round, no more rides, those days are gone, the feeling is just like those amusement rides in my head when I do get vertigo, it is horrific feeling!

As I walk, I'm sure many times, people have looked at me thinking that I have had too much to drink, because as I am walking, I veer a little to the left or right because Meniere's affects my balance. So, I am careful.

My life has changed because of this disease. I never know from
one day to the next what will happen, however, I do not dwell on what ifs. I choose what I can do and can't. It hasn't affected my love for my family or friend-ships, and life. It is a journey for me, I am enjoying my journey of life as best I can, however, I dislike intensely having this disease, but, hope, faith, courage, and inner strength is within me to deal with this every day of my life.”

Ruth Coole