“Meniere’s has stolen a lot from me
You take for granted your activities are free
Free from worry, free from stress
This disease has made my life a mess.
But in the chaos I still exist
My thoughts and dreams creeping into the mist
There will come a time when I will be well”
Taken from a poem by J.Heck
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“I used to remember how to trek places
I’ve traveled a thousand times before.
I reminisce of the music I once played on the piano
But grieve that I cannot ever hear my grandson’s sweet voice.
But now I am physically and emotionally bankrupt working to stay upright
Because this is what living with Meniere’s Disease is like.”
Taken from a poem written by S.Mason
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“Overwhelmed, but not one to be overtaken
I believe in my strengths to attain life’s goal
Each day a new sun rises upon the horizon
Igniting and infusing my once somber soul”
Taken from A Once Somber Soul, Written by R. Kostiuk
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Wife Has Meniere’s
Spins, Falls, Vomits
Unbelievable, Incensed, Frustrated, Accepting
Donis
Written by B. Cook
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“The Beast.
It lurks within us.
Watches our every move.
How we live,
what we eat, drink, smell,
Inhale.
the way we feel,
react.
It plays with our emotions.”
Taken from The Beast, Written by M. Johnson
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Fullness builds
Head caught in a vise
Tinnitus roars
No blocking it out
Vertigo spins
Hold onto the floor
Hearing departs
Lonely silence invades
Episodic reprieve
Relief in sight….
Episodes
Written by L. Weber
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“In the blink of an eye, I started falling
But that’s what happens when Meniere’s comes a calling
Six foot one, with muscles like steel
But no-one can see, how horrible I feel
He looks fine, so he must be, isn’t that what they say
In my shoes they should walk, for one friggen day”
Taken from Drops, Written by K. Clawson
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Spin around the roomsie
try not to go oopsie
spinning, spinning
we all fall down.
Written by DL Bach
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I don’t know how I feel about having this disease
At times it leaves me breathless and falling to my knees
The morning brings such sorrow as I try and leave my bed
As spinning, heaving, follows, as noises hurt my head
I try to smile and fake it telling everyone I’m fine
But if you could see inside me, I’m anything but sublime
...anything but sublime Written by Aladdin
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“I have a new group of friends
I met them on the ‘net’
We never hear each others voice
But they are the best one’s yet.
They are others who are just like me
Who’s lives have changed like mine.
Together we discuss this and that,
And we are doing fine.
We give each other our support
And try to help each other out.
And try to make a difference
In a world that shuts us out.”
Taken from An Ode to Meniere's Disease Written by J. White
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It is a feeling of being in a fog trying to make my way at times to my room, any room and feeling relived to be there. Musical instruments that make various beautiful sounds that create lovely songs can be for me at times very engulfing to my ears. I feel like I am in the middle of the players and want to shout “Stop playing”! I hear all sounds, various sounds in my ears every day, all the time.
Many, many years ago, I enjoyed going to the amusement park, even when my children were grown, I enjoyed the merry-go-round and the Ferris wheel, the excitement and the feeling of the ride, going round and round, no more rides, those days are gone, the feeling is just like those amusement rides in my head when I do get vertigo, it is a horrible feeling!
As I walk, I am sure many times, people have looked at me thinking that I have had too much to drink, because as I am walking, I veer to the left or right because Meniere’s affects my balance. So, I am careful.
My life has changed because of this disease. I never know from one day to the next what will happen, however I do not dwell on what if’s. I choose what I can do and can’t. It hasn’t affected my love for my family or friendships, and life. It is a journey for me, I am enjoying my journey of life as best I can, however, I dislike intensely having this disease, but, hope, faith, courage, and my inner strength is within me to deal with this every day of my life.
What Living With Meniere’s Disease Is Like
Written by Ruth Coole,
Winner of the 2010
Meniere’s Resources, Inc.
Poetry Contest
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“Having Meniere’s Disease is like dressing up in a costume for Halloween…..
The real me is hidden behind the Meniere’s diagnosis……
Having Meniere’s Disease is like reaching for a glass of water to quench your thirst and then finding
that glass empty….. you are always looking for relief….
Having Meniere’s Disease is ….something I have….
But I still won’t let it have me….”
Taken From Having Meniere’s Disease is Like
Written by R. Gibbs
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“I try to take a positive attitude, add a sense of humor, and hang on for the Meniere’s ride
After years of agony and tears,
I now have learned to embrace my wandering gypsy soul side
I strive to minimize stress, eat healthy (low Salt), find peace, and let God be my guide
Meniere’s may have changed my life … but it will NEVER cause my passion, love and care for others to hide”
Taken from Meniere’s…
Written by Donis
